Cystic fibrosis

Association of Chartered Physiotherapists in Cystic Fibrosis (ACPCF)

Contacts

ACPCF logoSarah Cameron - Membership Secretary

Address

West Midlands Regional Adult Cystic Fibrosis Centre
Ward 26
Birmingham Heartlands Hospital
Bordesley Green,
Birmingham
West Midlands, B9 5SS

Telephone

Tel. 0121 4242000 (switch), bleep 2854

Email

sarah.cameron@heartofengland.nhs.uk

Website

Network on iCSP

Area of Interest

Cystic Fibrosis, both the management of children and adults

Publications
  • Clinical Guidelines for the Physiotherapy Management of Cystic Fibrosis (2002) (Currently being updated by the ACPCF);
  • Contributions to:- CF Trust's Standards of Care (2001), new updated standards about to be published ; Pseudomonas Aeruginosa Infection in People with Cystic Fibrosis (2001);
  • ACPCF Physiotherapy Guidance papers on a range of topics are currently under development. Some are already available on iCCP in the documents section e.g. Monitoring Sputum Cultures, and Managing haemoptysis.
  • The ACPCF have also developed a range of information leaflets on behalf of the CF Trust available via the CF Trust website on topics such as Airway Clearance Techniques, Physiotherapy for babies and toddlers, Incontinence, Exercise.
  • Suggestions for useful outcome measures are also available
Events

Annual sponsored 2 day Study event

Regional meetings locally

How Does the Group Support Continuing Professional Development / Lifelong Learning We have our own network on iCSP Regional network
There is a regional network involving regular meetings.

Publications (see above)
A newsletter has been published twice a year until recently, but a new electronic newsletter format is being developed.

Suggested reading list
A list of recommended titles is available.

Conferences and study days
The ACPCF holds a sponsored 2 day national study event year. Study days and meetings are organised locally by regional groups.

Links with other groups/organisations
The group maintains close links with the Cystic Fibrosis Trust, the patients' charity, CF nurses group, with the Association of Chartered Physiotherapists in Respiratory Care, the international cystic fibrosis physiotherapy group (the IPGCF), International Patient Group for Cystic Fibrosis.

 

How Does the Group Promote Research and Evaluation Promoting research awareness
We have a research officer who can advise and guide members undertaking research. A research culture is encouraged through the study days with poster sessions and opportunity for members to present their research work. Members are also encouraged to attend and present at international meetings. Experienced researchers are able to offer support through regional groups.

 

Published evidence-based material
As well as the above mentioned publications, an ACPCF working group have produced guidelines with the British Thoracic Society on the physiotherapy management of adults with CF. These are due for publication. Similar BTS guidelines for the paediatric population will be developed.

Who Can Join

There are two categories of membership. Individual membership is open to all chartered physiotherapists. Departmental membership, where newsletters and other materials are sent to the department and any member of the team may attend meetings and events.

What is Expected of Members

Active involvement by members in contributing to discussions on iCSP is encouraged, and attendance at study days and regional meetings is strongly recommended. We actively encourage members to be involved in various working groups, in the development of guidelines and contributing to material produced on behalf of the CF trust for families

Subscription Details
  • Individual £15.00
  • Department £35.00

Full details on how to join can be found on the ACPCF network on iCSP

Useful Links / Information

Via iCSP a whole range of links are available, including the CF Trust, IPGCF, and useful newletters and databases.

CSP Status Group Recognised